Looking Forward
Took the youngest boy off of Phenobarbital this weekend. It was the last step of a three-month plan to wean him off it, one that we started after our last stay in the hospital back in October. He had been in for a 24 hour EEG that showed his brain “background noise” was getting closer to normal and that most of the posturing he does were not a result of seizures, but a result of muscle spasms cause by his brain injury. Good news to us of course, and also to him, as his Neurologist thought we could start taking him off of Phenobarbital as he could see no medical need for it to continue. He hasn’t been completely off it long enough to see if it’s gonna make much difference in the day-to-day. So far, as we’ve been tapering down, the biggest change has been his frustration in his inability to move very much. Now this might be good in the long run. We’re all hoping that perhaps this frustration will be the motivation he needs to start doing more, that it’ll be the dissatisfact...